Community forum vs social media

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Moderator: pmaxwell

Community forum vs social media

Postby pmaxwell » Wed May 13, 2015 10:09 am

Are website message boards a thing of the past? While our social media pages continue to grow; our community forum receives less and less activity. People still want to join the forum but seldom post. The positive about this board is the information is dedicated to Chiari and syringomyelia and is a closed group. Of course we do not run a check on those who register but due to what you have to go through these day to register, who would want too unless they or a loved one has the disorder.
Together We Can...
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Re: Community forum vs social media

Postby syrinx48 » Sun May 17, 2015 10:42 am

Hi Patricia,

I prefer to have the community forum above the social media!

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Re: Community forum vs social media

Postby Liskell » Wed May 20, 2015 10:46 am

Hey all,

I have not posted in a long time, but do check in now & then...mainly due to just being stuck in such a limbo with my conditions for the last few years, nothing can be done, nothing can help, I just have to accept & get on with it, so therefore feel I cannot add much to the forum.

I much prefer this type of private community forum, social media is great for socialising, but not the place for discussing health/personal issues.

Spina Bifida/Tehthered Spinal Cord/Scoliosis/Syringomyelia (C1 full descent)
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Location: Scottish Highlands

Re: Community forum vs social media

Postby razzle » Thu May 21, 2015 5:15 am

private forum
Once you choose hope, anything's possible.

Roz( Razzle51 or Rosalyn
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