leg giving out - what to do?

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leg giving out - what to do?

Postby svennobalance » Thu May 31, 2007 12:35 pm

Hi all -

I've been getting more active lately but over the last couple of days have had my bad leg give out on me completely and fallen down. I think this is spasm-related but am not sure. I take zanaflex for spasms and it works usually if I move around a lot.

Anyway, if I decide this is something to see a doc about, which kind would people recommend? I currently have a pcp, physiatrist, psychiatrist, and an nsg.
chiari, decompressed dec 05, syrinx, hydro, baclofen pump October 2007, rev jan '08, VP shunt April 2009
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Postby razzle51 » Thu May 31, 2007 2:00 pm

well you need to follow the chain of command as they say here. Your GP first then he will refer you out if need be.
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Postby mac » Thu May 31, 2007 2:17 pm

Gabriel, have you been evaluated for tethered cord? Have you researched it at all?


Postby Ryzing » Thu May 31, 2007 7:19 pm

Hmmmmmmm...I've had a symptom that's similar - not sure it's the same, but while I'm standing, all the sudden my knee will buckle. Usually it's the left one. I almost fall, but luckily I've caught myself each time. It's been happening a lot lately. Muscle spasm is one of my most prominent symptoms. (I take Zanaflex, too.)

Syringomyelia - C4-T12, Fibromyalgia, Scoliosis, DDD
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Postby prism » Sun Jun 03, 2007 9:41 am

I have those symptoms too. 20 years ago I was told it was a "hysterical" problem and after I worked on using my hips more to walk and strengthening very carefully the muscles around the joint I was better able to rely on the knee again. (I also have EDS a connective tissue syndrome which makes joints unstable)
Now, it's worse again, and affects more of my muscle control than just the knees, and I am guessing it has more to do with Chiari and possible syr. and all the related problems. Can't really help you but just thought I'd share my experience. hope you find the help you need. 8) prism

Postby hartagold23 » Sun Jun 03, 2007 10:41 pm

I agree that you should get checked for tethered cord syndrome, because I had these "drop attacks," which aren't always due to CM, and I didn't have CM, just TCS. I would definitely look into it.

SM/TCS/SB-lipoma/B12 def/Scoliosis/IBS. Had TCS surgery May 24 '07-syrinx totally drained! CSF leak repair--July 16 '07. Currently using a walker for short distances, probably permanently. Surgery was worth it to kill most of the pain!
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