My Doctor wants to know..............

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Postby dizzy2 » Mon May 21, 2007 9:57 pm

My sleep paralysis happened to me when I woke up out of a sleep. I didn't even know about cm. If I get woken up out of a sleep by my kids or husband I get really shakey and thats when it could happen to me. I tell them not to wake me up unless it's absolutely necessary. I've woke up before and not known where I was. I did but I didn't. It was really weird. What did your dr. say about the sleep paralysis? Is it a neurological thing? I don't even know what or if there is any compressed spinal fluid flow. I still need to find this out. I tell ya, if I knew the surgery would completely get rid of my dizzyness I would have it right away. I can't stand it.

Where are you from? If you're from CA I'd tell ya to call me when you are experiencing these symptoms when you are scared and I could talk you through it. Or any other time you need someone to talk to. I know I could use someone to talk to about this. No one seems to understand. I look forward to getting on here and just talking to everyone who knows what we are talking about.

WEll, blessings to you and much success in your recovery.

Posts: 67
Joined: Fri May 18, 2007 2:51 pm
Location: Newport News, VA

Postby hayla2 » Tue May 22, 2007 6:22 am

Most of you have said that you battle many of these symptoms. I am curious, have any of you been tested for Narcolepsy? It is just odd that you have at least a few of these symptoms and yet say you don't have the disorder. Just wondering. I go for my sleep study next week. I am hoping it will be like a vacation. Me, myself, sleeping! No kids, no snoring hubby. Hmmm. It may be the best sleep yet! Hehehehe
Posts: 91
Joined: Wed May 16, 2007 6:37 pm


Postby hoz74 » Tue May 22, 2007 6:51 am

Hi all,
I get the sleep paralysis when I fall asleep. My doc didnt say much about it. These small town docs around here don't have a clue. They want to send me to a sleep clinic, but it is hard for me because my hubby works night shift and he is a boss and we have three kids too look after too. I am from OH (long way from CA) If i ever go on Vacation I will let ya know lol 8)
ACM decompression surgery sept 06
Lord Keep your arm around my shoulders
and your hand over my mouth
Posts: 198
Joined: Thu May 17, 2007 12:12 pm
Location: Ohio

Postby dizzy2 » Wed Jun 06, 2007 10:21 pm

Hayla, have you had your sleep study? I have not been on board on a daily basis. I would love to hear what they found. I hope all went well. I have never been tested for narcolepsy. I don't think that my sx I have are for that dx. Thank God I havn't had any sleep paralysis in almost a year. I don't ever want to experience this again. It really scared me. My mind went mush too. I didn't know where I was, I did but I didn't. Very scary!

Well, hope all is well and your test came out negative.

Posts: 67
Joined: Fri May 18, 2007 2:51 pm
Location: Newport News, VA

Postby Gracie Rose » Wed Jun 06, 2007 11:55 pm

I had several of those issues but after my de-tethering/decompression/fusion, my central apnea disappeared, along with the symptoms. Dr. B told me they would.


Gracie Rose
Posts: 127
Joined: Wed May 30, 2007 1:02 am

Postby mac » Thu Jun 07, 2007 12:10 am

I had sleep paralysis this afternoon, waking up from a 2 hour nap. I hated it! I had had it 3 years ago, close after my injury. But not really since then. Today, it was just plain weird.



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