Any Recommended Drs in Orlando/Central FL

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

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Any Recommended Drs in Orlando/Central FL

Postby kellycotton1432 » Sun Feb 14, 2010 9:45 pm

Hello Everyone
My 12 year old daughter just had an MRI that shows a syrinx c4-c6. That is all we know at this point, she has an appointment with a Neurologist (Ronald Davis) who is associated with Arnold Palmer Hospital, but we dont know if he knows anything about Syringomyelia. The neurosurgeons who read the MRI recommended a brain MRI and a more intrusive MRI of c4-c6. (My guess os they are looking for Chiari?) She gets headaches/migraines 2-3 times a day, and loss of feeling in her lower legs and feet about once a week, and trouble breathing quite regularly, among many other symptoms. I'm just very worried about her and looking for any info I can get... Do any of you habe any experience in FL with any good Neurologits and or Neorosurgeons?
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Re: Any Recommended Drs in Orlando/Central FL

Postby razzle » Mon Feb 15, 2010 6:03 am

* Dr. Barth Green
University of Miami/Jackson Memorial Hospital
Miami Project to Cure Paralysis
1501 NW 9th Ave
Miami FL 33136
(305) 585-5100 or (800) 996-3783
Dr. Green's Webpage: ... _spine.htm
Online Consultation Page:

Dr. Randell Powell
836 Prudential Drive
Jacksonville 32207
(ph) 904.398.2756 or 1.800.329.0040

Dr. Eric Trumble
22 Lake Beauty Drive, Suite 204
Orlando, Florida 32806
Phone: (407)236-0006
Fax: (407)236-0007

Dr. Donald Behrmann
Orlando Neurosurgical Group
1801 Cook Ave., Orlando, FL 32806
Phone: 407-425-7470
Fax: 407-425-5219
Once you choose hope, anything's possible.

Roz( Razzle51 or Rosalyn
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Re: Any Recommended Drs in Orlando/Central FL

Postby Sara » Mon Feb 15, 2010 3:52 pm

I live in central fl. My daughter has had multiple surgeries, I know almost every ped nsg in the state. email me at Dr Davis won't be of help, you need a nsg. You might try Dr Bhatia ... torID=1153

and I know one mom who likes Dr Oliveria in Orlando. or tampa- dr jerry tuite
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Re: Any Recommended Drs in Orlando/Central FL

Postby kellycotton1432 » Mon Feb 15, 2010 8:25 pm

Thank you very much guys! I am going to keep the appointment with Dr. Davis just to see what he has to say. Maybe he will get the other MRIs ordered quickly too. How long does this process usually take? And do you think it is bad that she is having so many headaches/migraines? We initially had the MRI cause she has what the pulmonologist called sigh breathing, and they got concerned about her legs and headaches. I don't even know if the syrinx can cause the breathing problem... The way her insurance works we have to go on referrels, ugh. Guess I will call the pediatrition in the am to get her an appt with a neurosurgeon!
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Re: Any Recommended Drs in Orlando/Central FL

Postby lttutrow » Tue Feb 16, 2010 1:02 am

I'd just caution you to ask for a specific neurosurgeon for the referral rather than whoever the primary care dr. recommends. Many of us here have found out the hard way that just because they are nsgs. doesn't mean they really understand what all is involved with these. You want someone who does many, many, many of these a year on kids.
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