New to CM

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

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New to CM

Postby Chatham chic » Sat Dec 08, 2007 11:19 am

Just wanted to log on and introduce myself.
My husband and I have four children - 13 yo, 10 yo, 7 yo(ADHD, Asperger's syndrome, ODD) and 2 yo (newly dianosed CM - 10-11mm).
Our 2 yo had some atypical seizures and an absence seizure while we were on vacation in August. After some testing we were referred to a neurologist who ordered an MRI. Expecting everything to come back clear we were quite floored to get the diasnosis of CM :shock: ! (She has WHAT???!!!) So, after learning everything we could earlier this year to help our 7 yo, we're now learning what we can about CM for our 2 yo.
Question: Does anyone know anything about Dr. Spinks from Children's Hospital in Pittsburgh, PA?
That's who we're going to see on 12/19.
Thanks for listening and any info. and input would be greatly appreciated!
Chatham chic
Posts: 23
Joined: Sat Dec 08, 2007 10:36 am
Location: Pittsburgh, PA


Postby razzle51 » Sat Dec 08, 2007 11:45 am

these are a few recommended by patients :
Dr Leland Albright
Chief of Neurosurgery
Childrens Hospital of Pittsburgh
One Childrens Place
Pittsburgh, PA

Dr. Leanard Bruno
727 Welsh Rd, Ste 108
Huntingdon VY, PA 19006

Dr. Shripathi P. Holla
Scranton, PA 18510

* Dr Ghassan K Bejjani
Greater Pittsburgh Neurosurgical Associates-UPMC
Aiken Professional building, Suite 311
532 South Aiken Avenue
Pittsburgh PA, 15232
Phone: 412-623-6910
Fax: 412-623-6911
I choose not to place "DIS" in my ability.

There is a light at the end of every tunnel....just pray it's not a train!.

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