Chiropractic care

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

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Chiropractic care

Postby Chatham chic » Mon Jun 16, 2008 10:39 pm

I have a chiropractor, whom I trust greatly, that uses applied kinesiology (how one muscle reacts on another) as part of his practice. He can be very gentle and does techniques other than manipulation when needed. I've discussed part of my daughter Sarah's condition (she's 3 years old) with CM and he is familiar with it, since his Dad has CM, as well. However, I have not been able to get back to see him since she was diagnosed with the SM and her surgery has been scheduled for August 1. Naturally, as a Mom, I don't want her to have the surgery and am willing to try unconventional methods (within reason, of course) to avoid surgery.

I was thinking about asking my chiro. to manipulate the bones of the skull to ease the crowding of the CM and see if that can clear up her syrinxes (2 small ones).

My question: Is anyone familiar with this type of treatment, experienced this treatment and had any successes or failures?
I will welcome any opinions.

Thank you!
Chatham chic
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Re: Chiropractic care

Postby razzle51 » Tue Jun 17, 2008 7:32 am

read No. 20 on this list . I would say no to chiropractor

and from the CCI website :
Should a Chiari patient have neck manipulations done by a Chiropractor? Is it dangerous?

Despite the fact that some Chiari patients benefited from a trip to the Chiropractor, and many were not helped, a large number of patients were hurt by neck manipulations. When I say "large", I mean this: during the year 2002, we saw more than 700 Chiari patients in the office, and bad stories concerning Chiropractors were only second to bad stories after car accidents. In our experience, Chiropractors have been responsible (in many instances) for: causing the onset of symptoms in formerly asymptomatic Chiari subjects; worsening the pre-existent symptoms; causing postoperative complications.

Gentle manipulations of the neck can be performed by Physical Therapists, or by your partner (or by the milkman, if the partner is at work). The training of Chiropractors seems to lead them to perform manipulations which are too harsh and dangerous for Chiari patients, the cranio-cervical junction of whom is as fragile as Michael Jackson's nose. Be nice to your Turkeys.

Paolo Bolognese, M.D.
I choose not to place "DIS" in my ability.

There is a light at the end of every tunnel....just pray it's not a train!.

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Re: Chiropractic care

Postby Janice » Tue Jun 17, 2008 10:40 am

Great post, Roz.

Hi Chatham Chic,

I'm very sorry to hear that Sarah is going through this. That's such a precious age and I'm sure she's a little doll.

I was trying to find supporting information but Roz has posted it above. It is dangerous to have chiropractic manipulations. I wouldn't subject my 3 year old to something this harmful. There just isn't an easy fix for CM or SM.

She's so young that there is a possibility that as she grows, things will change. An expert can help you with this and provide enough details so you're able to make an informed decision and feel comfortable that whether Sarah has surgery or not, you're doing the right thing.

I only know of Dr. Frim in Chicago and Dr. Mendez (?) in Iowa. There are other pediatric neurosurgeons but I can't think of them right now. You have plenty of time before August. There are some experts who will look at the films for free and tell you if they need to see her. Most times, the doctor won't agree to see her unless they feel they can help her.

It would be in Sarah's best interest if you could get to a CM/SM expert. Make sure you get a second opinion. Not all NeuroSurgeon's know about CM. Make sure Sarah's surgeon has performed more than a few decompressions. Brain surgery is very serious and you want the best for Sarah so make sure her surgeon has done many decompressions. It's not enough that s/he has operated on the brain before. They have to be an expert at performing brain decompressions.

Take care and you both are in my thoughts and prayers.
GOD Bless!

Thoracic: SM T3-T12 / Disc Buldge T7-T9 / Mild Scoliosis
Cervical: SM C2-C6 / DDD / Kyphosis
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