Persistent Syrinx

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

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Persistent Syrinx

Postby texasmom » Tue Sep 28, 2010 2:20 pm

Anyone's child have 2 decompressions due to syrinx not having gone away after first decompression? Any indication on CINE MRI that flow was not good after first decompression surgery? Did syrinx resolve after second decompression? Thanks!
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Re: Persistent Syrinx

Postby Lipper5 » Wed Sep 29, 2010 4:10 pm

My son had decompression and it stopped the syrinx from growing any bigger. Never took it away. We waited and watched it via mri every 6months until symptoms came. And then my son started having bladder issues. And they were getting worse so they felt it was time to now shunt the syrinx. So he had the surgery on his spinal cord in feb of this year. Never was there a conversation about decompression again. However, the syrinx is smaller. Almost completely gone. Bladder is better but not 100% but I believe that us leaving that syrinx in there that long really added to more problems in my sons life.
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