by karenb » Mon Apr 02, 2012 10:44 pm
Dear Thirupathi,
The form of Syringomyelia you have is the type I first heard of when I was diagnosed. You mentioned that it was post-Tuberculosis, which is a type not seen much here in the U.S. An aquaintance of mine at the local university has something similar, and we've discussed our common (but uncommon) condition a number of times.
Can you tell us more about your syrinx? Meaning where is it and how wide is it? For example, my syrinx is from T6-T9, 3mm at its widest. Also, do you know if you have a Chiari malformation? (That's the most common cause, and it's the cause for which the most genetic research has been done.)
Also, the late Dr. Marcy Speer was the pioneering researcher into the genetics of Syringomyelia and Chiari Malformation - you might want to research some of her studies and findings.
Best wishes, and we look forward to hearing back from you soon.
Karen