I have Sm, Bi, TCS, after my CCF they found I
Had a cm 0, 2 of my 3 kids have SM. I hate my pediatric
Neurologist. My daughter also has an an arachnoid cyst
In the posterior fossa of her brain. They say Sm is
Not congenital. HELLO!!!! Any way, I am super frustrated
Because no one seems to care as to why my kids have it!!
It took my Neuro sending me to dc to a specialist
To find I had BI. I can't tell you how many drs I saw
In Pittsburgh, and Cleveland clinic and they all scratched
There heads. I am frustrated because I feel like they
Should be looking for a reason.. And not just letting
Their spines deteriorate!! Did I mention that I had an MRI
When I was 16 when I first really started Gavin proble
That said I had ddd.. And no one cared. To make matters
Worse my oldest daughter had an MRI.. And was diagnosed
With ddd at 13!! I don't mknow what to do.. Obviously
There is more than meets the eye