Walks Bring Awareness

ASAP volunteers have been busy this spring bringing awareness to many parts of the country by hosting events in their area.

Special thanks to:

Beth Brixius – Syringo-My-What? Steps Across the States – April 5 in Great Falls, Virginia

Heather Leitner – 1st Annual Walk & Roll for a Cure 5k – April 12 in Hurricane, Utah

Tabitha Peters – Syringo 5k Walk & Roll and Kids Lollipop Walk & Roll – April 19 in Peru, Illinois

Yogi Borys – 1st Annual Yogi’s Walk & Roll – April 26 in Geneva, New York

Lauri Edwards & Charyl Turner – Syringo-My-What? Steps Across the States – April 26 in Tulsa, Oklahoma

LeeAnn Clutter – Syringo-My-What? Steps Across the States – April 26 in Kingston, Oklahoma

Margaret Leisenheimer – Syringo-My-What? Steps Across the States – April 27 in Middle Village, New York “The event was great………a little chilly…..but great! LOL Margaret did a really good job! She’s so young! I was expecting a full grown………..and got this effervescent teen! She’s adorable. She made an impression on my kids (23 and 20) and many of my entourage. They are used to seeing me with all my aches and pains and issues. When they saw Margaret, all everyone kept saying is “……..but she’s so young.” Talk about needing awareness! JS”

Laurie Swihart and Cathy Tufts – 3rd Annual ASAP’s Sugar Land Texas Walk and Roll for a Cure – May 3 in Sugar Land, Texas

Rain Deskin – Rain’s Day 1k Walk & Roll for Syringo & Chiari – May 17 in Christiansburg, Virginia

Tutrow family – 5th Annual ASAP Walk & Roll for a Cure – May 24 in Greenfield, Indiana

Gina Huffman – 1st Annual Walk & Roll Lewis Center Ohio – May 31 in Lewis Center, Ohio

Cat Becker – ASAP’s Media, PA Together We Can Walk & Roll for a Cure – May 31 in Media, Pennsylvania

Anna Tannreuther – 3rd Annual Clyde’s Chiari Awareness Walk – June 7 in Middletown, Ohio

Sunshine Matthews – Sunshine’s Charity Run – June 27-29 in Ferguson, North Carolina

Medical Advisory Board Member Takes New Position

John A Jane, Jr, MD joined the ASAP Medical Advisory Board in 2009.  His promotion as Director of the Residency Program at the University of Virginia School of Medicine and Medical Director of both its inpatient and outpatient services has led him to step down as a member of the ASAP Medical Board.

Dr. Jane wrote, “It has been my pleasure serving as a member of the Medical Advisory Board for ASAP.  This is a wonderful patient advocacy organization and I have learned a great deal from my interactions at the ASAP meetings.  There is a family atmosphere that I appreciate greatly and have enjoyed getting to know everyone.”

We have been honored by Dr Jane’s involvement with our organization as a pediatric neurosurgeon.  We extend our congratulations and best wishes for the future.