May is Syringomyelia Awareness Month
The ASAP Board of Directors has added new Board members in recent months.
Bridget Borys was elected in December 2016 while John Caemmerer was reelected in February 2017.
Bridget graduated from SUNY Fredonia in 2007 with her Bachelors in Social Work. She is currently employed by Ontario ARC as a Medicaid Service Coordinator, helping those with developmental disabilities. Bridget lives in Seneca Falls, NY with your husband Michael ‘Yogi’.
Yogi was diagnosed with Chiari and syringomyelia in 2001 when running wind sprints training at the police academy. Thankfully a doctor at the local emergency room knew about Chiari malformation and syringomyelia and ordered the MRI.
In 2007 Bridget and Yogi held their first fundraiser with a friend’s band to raise money for ASAP programs. Since that time she has been fundraising and spreading awareness for both Chiari malformation and syringomyelia. Bridget has helped organize several walks in the past few years. Most recently, with the assistance of her family, she created a Community Fun Day to spread awareness of Chiari malformation, syringomyelia, ASAP, our mission and vision.
Bridget enjoys helping others and tries to see the positive in everything she does. She looks forward to helping others on this amazing journey with ASAP.
John Caemmerer was born and raised in Long Island, N.Y. After getting married, he moved to New Jersey where he raised his family. John now resides in New York again and is self-employed in the construction industry.
John first became involved with the organization when a longtime friend invited him to a fundraising walk. Moved by the personal stories he heard that day, he made the offer to assist with future events. With a background in sales, he was an asset in promoting and developing events. After volunteering for a couple years, he joined the Board of Directors.
John is currently serving on several committees with a special interest in fundraising and raising awareness.
He has served as Chair for the Conference Committee for a number of years. It is John’s belief that while we search for a cure, the work that ASAP performs serves to improve the quality of life for persons affected by SM, CM, and related disorders. He believes that by his service he can help people empower themselves to live a life that is defined by their abilities and accomplishments in spite of their diagnoses.