1st Cruising for Chiari in Augusta

On September 15th, we had our 1st Cruising For Chiari Motorcycle ride to raise awareness for Chiari. It was a small group of about 20 riders. It was a gorgeous ride and the weather was perfect. While my hope was for a larger group…any form of awareness is a movement in the right direction. Fun was had by all and we even raised some money for ASAP.

Molly’s 4th Annual Walk & Roll

On September 15 Molly Lichtenstein and family hosted their 4th annual walk to raise awareness in Maryland. Molly works hard every year to make her walk more successful and once again she has surpassed her goals.

Special Thanks Molly’s 4th Annual Walk & Roll sponsors:

Recreation Complex

Silver Sponsor Molly’s Walk 2018

Silver sponsor Molly’s Walk 2018

Silver sponsor Molly’s Walk 2018

Silver Sponsor Molly’s Walk 2018

Silver Sponsor Molly’s Walk 2018

Bronze Sponsors

Brass Sponsors

Friends of ASAP

Law Offices of Steve Gittleson
Healing Hands Chiropractic
Birchwood Lawncare Inc

Thank you to all participants:


Cosponsors scientific meeting

In the interest of supporting the CM/SM community, ASAP will cosponsor the

Scientific/ Medical Meeting

June 2019

Hosted by Marcus Stoodley, M.D., and Lynne Bilston, M.D., this meeting will bring specialists together to challenge, have candid discussions, and share new ideas. This meeting will be cosponsored by COH, ASAP, Conquer Chiari and the Canadian EDS group, ILC Foundation. It will be held in Buffalo, NY .

We are proud to join and contribute with other leaders in our community to better serve our community as a whole. Through greater partnerships we can achieve greater results. It is ASAP’s Board of Directors belief that this investment in partnerships will have a positive impact far greater than each sponsor working separately. Simply a case of the whole being greater than the sum of its parts. We look forward to sharing those results.

Chiari Awareness Month 2018

The American Syringomyelia & Chiari Alliance Project, Inc. is seeking your help in getting every state’s government office to declare September the official month for Chiari Awareness. We have been doing this for several years with great success. Unfortunately it has be be renewed every year.

What is a Proclamation?

A proclamation is an official declaration issued by a government office. By getting each state to do a proclamation for Chiari Awareness we will be raising priceless awareness about a disorder that affects many lives. We need your help to make this a success. Most states have online proclamation forms that can be found on the governor’s website. If you are interested in helping this endeavor please contact info@ASAP.org for more information.

2018 Conference Speakers updated

four more speakers have confirmed to present at the ASAP Chiari & Syringomyelia Conference this July!

David D. Limbrick, MD, PhD – Professor of Neurological Surgery and Pediatrics
Neurosurgeon-in-Chief, St. Louis Children’s Hospital
Neurosurgery Residency Associate Director

Petra Klinge, MD, PhD – Associate Professor of Neurosurgery at the Warren Alpert Medical School of Brown University.

Vibhor Krishna, MBBS – As a neurosurgeon, I specialize in neuromodulation and functional neurosurgery. When it comes to patient care, empathy is fundamental to my approach and interaction with patients. As a clinician-scientist, I’m involved in patient-centered research to improve and advance our care. I’m very passionate about discovering new treatments for conditions that were originally thought to have no cure.

Gabe Haller – Geneticist Washington University School of Medicine, St Louis, Missouri

Kicks & Licks 2018

Join ASAP and VCA SouthPaws for our second annual fundraiser for dogs and people affected by Chiari Malformation and Syringomyelia!

May 5th at 11 AM, BLUEMONT PARK, ARLINGTON Virginia!

Dr Lauren Talarico will present findings from the first annual Kicks & Licks research grant. Activities for families and their fur babies will include

· Photography Booth
· Agility Course
· Leash Lessons
· Paw Painting
· Vendors
· Raffles
· Pack Walk @ 11:30 AM
· Music, Food and More!


Or create a team to start you own fundraising campaign. The top fundraiser wins a mini photo shoot with Outside the Lines Pet Photography!

Other great prizes include gift cards, doggie accessories and even an MRI from Animal Scan!

Spread the word and RSVP on Facebook click to visit our FaceBook event page!

Volunteers needed, contact jlsadrak@gmail.com for info.

2018 Speakers ASAP Conference

Speakers confirmed for the ASAP Chiari & Syringomyelia Conference to be held at the Gaylord Resort in Orlando, Florida July 25-28. Clicking on the name will take you to more information about each speaker.
Ian Heger, MD
Eric Trumble, MD
Erol Veznedaroglu, MD
Harold Rekate, MD
Justin Virojanapa, MD
Herbert Fuchs, MD
John Heiss, MD
Bermans Iskandar, MD
Barth Green, MD
Jeffrey P Greenfield, MD
Arnold Menezes, MD
Brian Dlouhy, MD
Carmac Maher, MD
Timothy George, MD
Roger Kula, MD