In 1988 Don and Barbara White officially founded the American Syringomyelia Alliance Project, Inc. A grassroots organization to spread awareness about a rare disorder that Barbara was diagnosed with several years earlier. It would be several more before she learned … MORE
The ASAP Bay Area Support Group will meet January 11, 2018 from 5 – 7 pm PST at the Stanford Children’s Health – Lucille Packard Children’s Hospital – Stanford, California. Gerald Grant, MD, FACS, Neurosurgeon and Associate Professor of Neurosurgery … MORE
Andrew Brodbelt is a Consultant Neurosurgeon who became interested in patients with syringomyelia and Chiari malformations when he did his PhD in post traumatic syringomyelia in Sydney, Australia with Marcus Stoodley. In July Dr Brodbelt spoke at the ASAP Chiari … MORE
Dancin Power teaches interactive dance classes 100% free of charge to hospitalized children, including patients facing chronic and life-threatening illnesses. By carefully adjusting all movements to better match each patient’s needs, Dancin Power is committed to putting physical activity within … MORE
A physiatrist is a physician who specializes in physical medicine and rehabilitation. They can play an important role in the battle those with Chiari and syringomyelia face on a daily basis. During the 2014 ASAP conference in Princeton, New Jersey, … MORE
With more adaptive technologies and progressive legislature, prospective college students with disabilities have countless resources available to make the transition to higher education less stressful. Affordable Colleges Online just updated their College Resources for Students with Disabilities guidebook. You can … MORE
July 22-25, 2015 Marriott at Eagle Crest Ypsilanti, Michigan Host Cormac Mayer, MD University of Michigan Health System Speakers: Allison Ashley-Koch, PhD, Duke University; Rajiv Bapuraj, MD, University of Michigan; Ulrich Batzdorf, MD, UCLA; Paolo Bolognese, MD, NSPC; Wade Cooper, … MORE
During the ASAP Chiari & Syringomyelia Conference in Princeton, New Jersey, Erol Veznedaroglu, MD, FACS, FAANS, FAHA, talked about Defining and Recognizing Symptoms of Chiari and Syringomyelia. Watch video now. Make plans now to attend our next meeting July 22-25, … MORE
Recognizing and Managing Sleep Problems in Chiari Malformation presented by Debra Deluca, MD during the 2014 ASAP Chiari & Syringomyelia Conference in Princeton is not available for viewing on our website.
This video from the 2014 ASAP conference in Princeton is available for viewing by clicking here or go to the 2014 Conference Presentations under online video library.