‘Tis the Season

Holidays can be extremely stressful. Shopping, cooking, parties and programs all demand time and energy that those with syringomyelia and Chiari might not have. Enjoy the holidays more by knowing your limits, schedule events to allow breaks and ask for … MORE

Syringomyelia Awareness Month

Syringomyelia Awareness Month The American Syringomyelia & Chiari Alliance Project, Inc. is seeking your help in getting every state’s government office to declare May the official month for Syringomyelia Awareness. What is a Proclamation? A proclamation is an official declaration … MORE

Miracle Flight Expands Program

In addition to their mission of providing free airline transportation for a child who must travel out-of-state for specialized medical care, They are expanding their scope of services by providing travel for children and their parents to attend medical conferences … MORE


Some days I feel like I am being torn in a thousand different directions.  I would love to be able to post to this blog everyday.  To share interesting bits of knowledge, helpful coping techniques or just a laugh.  But … MORE

Weather and CM/SM

If you know you can predict the weather better than your local meteorologist, you’re not alone. However you have probably thought twice before telling others. After all who wants their friends and family or even their doctor thinking they’re crazy … MORE

Spring 2014

Winter is still holding on in some parts of the U.S. but in many areas Spring has arrived. The blue bonnets are in full bloom in Texas. It is time to get out and enjoy the warmer temperatures and sunny … MORE


Those facing a condition that can drastically change their lives need support. Often it comes in the form of a stranger. It is hard for those who do not have a disorder to fully understand but someone who shares the … MORE