Great Expectations - Conference – Main Agenda


ASAP Conference 2019
Agenda

Agenda (times, speakers and topics are subject to change)

Wednesday, July 24, 2019

6 p.m.              Onsite registration –  Conference materials pick-up

7 p.m.              Welcoming Reception –  Dinner Buffet hosted by ASAP

8:30 p.m.         Support Groups: Break out Meetings – Patients, Parents, Friends & Family

Thursday, July 25, 2019

7-8 a.m.           Complimentary Buffet Breakfast

8a.m.               Welcoming Remarks

                        Eric Berning, President of American Syringomyelia & Chiari Alliance Project

8:15 a.m.         Conference Opening Remarks and Program Overview

                        Erol Veznedaroglu, MD, FACS, FAANS, FAHA

                        2019 Conference Chair

8:30-9 a.m.      Surgical and Nonsurgical Treatment of Chiari Malformation

                        Erol Veznedaroglu, MD, FACS, FAANS, FAHA

                        Global Neurosciences Institute

9-9:30 a.m.      Establishing a Novel Neural Tissue Deformation Biomarker for Type 1 Chiari Malformation

                        Bryn Martin, PhD, University of Idaho

9:30-10 a.m.    Chiari Malformation in the Pediatric Population

                        Tina C. Loven, DO, Global Neurosciences Institute

10-10:15 a.m.  Q & A 

                        Led by Erol Veznedaroglu, MD, FACS, FAANS, FAHA

10:15-10:30 a.m.         Coffee Break

10:30-11 a.m.  ASAP-Funded Chiari-Syringomyelia Surgery Prospective Multi-Center Trial: Final Report

                        Bermans J. Iskandar, MD

                        Department of Neurological Surgery

                        University of Wisconsin, Madison, WI

11-11:30 a.m.  Clinical Management of Syringomyelia and Chiari Failures

                        Gerry Grant, MD, Stanford University

11:30 a.m.-      Panel Discussion/Q & A

                        Led by: Erol Veznedaroglu, MD, FACS, FAANS, FAHA

12-2 p.m.         Break for Lunch

2 p.m.              Afternoon Session begins

2-2:30 p.m.      Craniocervical Instability

                        Paolo Bolognese, MD

2:30-3 p.m.      Associated Disorders: Cranisynostosis, Pseudotumor cerbri, EDS, Hydrocephalus, Tethered Cord, Neurofibromatosis, Epilepsy

                        Timothy George, MD

                        Dell Children’s Medical Center of Central Texas, Austin, Texas

3-3:30 p.m.      Long-term Outcomes of Pediatric Chiari I Malformations and Therapeutic Options for Treatment of Failures

                        Robert Keating, MD

                        Children’s National Medical Center, Washington, DC

3:30-4 p.m.      Panel Discussion/Q & A

                        Led by: Erol Veznedaroglu, MD, FACS, FAANS, FAHA

 4 p.m.              Adjournment

 

Friday, July 26, 2019

7-8 a.m.           Complimentary Buffet Breakfast

8 a.m.              Morning Announcements

8:15 a.m.         Conference Opening Remarks and Program Overview

                        Erol Veznedaroglu, MD, FACS, FAANS, FAHA

8:30-9 a.m.      Navigating Pain Management During the Opioid Epidemic

                        Natalie Gofman, Pharm.D, BCPS, BCCCP

                        Global Neurosciences Institute

9-9:30 a.m.      Cranial Surgical Abnormalities

                        Robert Heary, MD

                        Robert Wood Johnson University Hospital

9:30-10 a.m.    Thethered Cord Syndrome

                        Petra Klinge, MD

                        TC Rhode Island

10-10:15 a.m.  Q & A 

                        Led by Erol Veznedaroglu, MD, FACS, FAANS, FAHA

10:15-10:30 a.m.         Coffee Break

10:30- 11 a.m. Spasticity in Chiari

                        Jill Farmer, DO

                        Drexel Neurosciences Institute

11-11:30 a.m.  Pain Management for the Syringomyelia and Chiari Patient

                        Gene Salkind, MD, Holy Redeemer Healthcare

11:30 a.m.-      Panel Discussion/Q & A

                         Led by: Erol Veznedaroglu, MD, FACS, FAANS, FAHA

  12 – 2 p.m.      Break for Lunch

2 p.m.              Afternoon Session begins

2-2:30 p.m.      Research to Improve the Understanding & Treatment of Syringomyelia

                        John Heiss, MD

                        National Institutes of Health

                        Bethesda, Maryland

2:30-3 p.m.      Strange Bedfellows: EDS, MCAS & POTS

                        Anne Maitland, MD

 

3-3:30 p.m.      Chiari and Syringomyelia in Pregnancy

                        Roger Kula, MD

                        Chiari Center, NSPC

3:30-4 p.m.      Panel Discussion/Q & A

                        Led by: Erol Veznedaroglu, MD, FACS, FAANS, FAHA

4 p.m.              Adjournment

 

Please join us for a Special Reception and Dinner celebrating

American Syringomyelia & Chiari Alliance Project’s 31st annual Conference

6 – 7 p.m.        Cocktails and hors d’oeuvres

7 p.m.              Dinner and Silent Auction

Saturday, July 27, 2019

7-8 a.m.           Complimentary Buffet Breakfast

8 a.m.              Morning Announcements

8:15 a.m.         Conference Opening Remarks and Program Overview

                        Erol Veznedaroglu, MD, FACS, FAANS, FAHA

                        2019 Conference Chair

8:30-9 a.m.      Fear of the Unknown: Handling Depression

                        Wei Du, MD

                        Drexel College of Medicine

9-9:30 a.m.      The Use of Medical Marijuana for Pain Management

                        Dave Knowlton

                        New Jersey Health Care Quality Institute

9:30-9:45 a.m. Q & A  

                        Led by Erol Veznedaroglu, MD, FACS, FAANS, FAHA

                        2019 Conference Chair

9:45-10 a.m.    Coffee Break

10- 10:30 a.m. Memory and Cognitive Issues in the Chiari Patient

                         Peter Gliebus, MD

                        Drexel Neurosciences Institute

 

10:30-11 a.m.  Panel Discussion/Q & A

                        Led by: Erol Veznedaroglu, MD, FACS, FAANS, FAHA

                        2019 Conference Chair

11 a.m.            Conference Adjourns