Syringomyelia Awareness 2019

In 1988 Don and Barbara White officially founded the American Syringomyelia Alliance Project, Inc. A grassroots organization to spread awareness about a rare disorder that Barbara was diagnosed with several years earlier. It would be several more before she learned the cause of her Syringomyelia was Chiari malformation. At the time it was extremely difficult to find information about the disorders. It would be years before the internet and information they were able to find was costly. They wanted to locate others who shared Barbara’s journey and offer support as well as began saving to fund research.

Every May we celebrate Syringomyelia Awareness Month to honor their legacy. Members around the world work on various projects to spread awareness, education and offer support to others. Many states issue proclamation each year naming May Syringomyelia Awareness Month! Volunteers hold local events and others share their stories in publications and social media.

Syringomyelia has a variety of causes and the disorder affects everyone differently. Many are misdiagnosed with other disorders or diseases. To look at an individual with Syringomyelia, you might not even know the extreme symptoms they experience each day. Others may have no symptoms.

We hope that you will join us in May as we continue our mission to improve the lives of lives of persons affected by Syringomyelia, Chiari malformation and related disorders while we find the cure.

Miss Teen Yucaipa

My name is Elisa Torrance and I am so honored to be the 2019 Miss Teen Yucaipa Titleholder!

I am a Sophomore at Yucaipa High School who is an athlete and often thought of as an “old soul” due to my love for tradition! I am a classic girl who finds pearls appropriate at every occasion. I am absolutely ecstatic to be representing my community!

I will be promoting my platform, “American Syringomyelia & Chiari Alliance Project”

This platform has a special place in my heart as I personally was diagnosed at eight years old with Syringomyelia. A chronic progressive spinal disease.

This will increase awareness towards finding a cure and support others to understand we can get through this together! As you can grow STRONGER 💪🏼

💙 Elisa Torrance 💛
Miss Teen Yucaipa 2019