The ASAP Chiari & Syringomyelia Conference will take place at the Marriott Long Island hotel on July 19 – 23. Attendees will have access to their choice of presentations, video posters, peer to peer support, special programs for children 5-16 and much more. Here is a quick look at the topics that will be presented on Sunday, July 23.
Sunday, July 23
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Pediatric CM1 and Surgery: why, when and how (learning by a review of more than 500 children, 160 operated on), Laura Valentini, Istituto Besta, Milano
Rapid Fire Panel about Chiari Surgery, Select Panel
Co-morbid conditions associated with EDS, Rodney Grahame, UK
Joint hypermobility and related spectrum disorders: terminology and classification, Marco Castori, Forlanini, Rome
New classification of EDS and diagnostic criteria for classical and vascular, Clair Francomano, Harvey Institute of Human Genetics
What are Dysautonomias? David Goldstein, NIH
Objectives and communication skills by the French advocacy group APAISER (French with English subtitles) Mado Glianton, APAISER (France)
The Ann Conroy Trust: development of a patient support charity in the UK, Graham Flint, ANN CONROY (UK)
Topic TBA, Carlo Celada, AISMAC
Is it Mast Cell Activation Syndrome? Diagnosis and Management of Mast Cell Disorders. Anne Maitland, Mount Sinai
NIH Common Data Elements, Brandon Rocque, Univ of Alabama
Engineering-based Methods for Static and Dynamic Assessment of Chiari malformation, Bryn Martin, Akron, Ohio
A genetic hypothesis for Chiari 1 malformation, Sabrina Giglio, Meyer Firenze
Should Sports Participation be Restricted? Cormac Maher, University of Michigan
Intracranial Venous Stenting: Past, Present, and Future, Kenneth Liu, UVA
Chiari I and Pseudotumor: Neurosurgical perspective Gerald Grant, Stanford University
Non-Surgical Management of Chiari-related or Postoperative Symptoms, Andrew Ringer, Mayfield
