What is Chiari Malformation?

Chiari (Kee-Ar-ee) Malformation is a condition in which the lower portion of the brain (the cerebellar tonsils) descends into the upper cervical (neck) region.

What is Syringomyelia?

Syringomyelia (sear-IN-go-my-EEL-ya)
is a chronic spinal disorder in which cerebrospinal fluid enters the spinal cord, forming a cavity known as a syrinx.

What is Chiari Malformation?

Chiari (Kee-Ar-ee) Malformation is a condition in which the lower portion of the brain (the cerebellar tonsils) descends into the upper cervical (neck) region.

What is Syringomyelia?

Syringomyelia (sear-IN-go-my-EEL-ya)
is a chronic spinal disorder in which cerebrospinal fluid enters the spinal cord, forming a cavity known as a syrinx.

ASAP aims to improve the quality of life for those impacted by these conditions through education and support, advocacy and collaborative initiatives with the medical community.

ASAP’S MISSION
To improve the lives of persons affected by Syringomyelia, Chiari Malformation and related disorders
while we find the cure

FOR PATIENTS, FAMILY & FRIENDS

For those living with Chiari malformation and syringomyelia —
and the families and friends who support them —
information and support are vital in understanding
the conditions and making the best treatment and lifestyle decisions.

Patients

Patients

(new and existing)

Learn about Chiari Malformation and Syringomyelia.

Education

Education

Register for our upcoming conference to learn more about Chiari and Syringomyelia.

Support

Support

Need Support? Want to start a support Group. Learn more…

Research

Research

Keep up to date. Learn about our ongoing research.

WHAT IS CHIARI & SYRINGOMYELIA?

Watch our video presented by real patients, and physicians to learn more.

HELP US HELP YOU.

Click here to help

Recent News

How to Advocate for Your Health

September 12th, 2024|Comments Off on How to Advocate for Your Health

Advocating for your health when dealing with Chiari malformation, syringomyelia and their related disorders is crucial for getting the proper care and treatment you need. Here are [...]

How Weather and Pressure Affect Chiari & Chronic Illness

July 31st, 2024|Comments Off on How Weather and Pressure Affect Chiari & Chronic Illness

If you know you can predict the weather better than your local meteorologist, you’re not alone. We’ve heard all our lives that people with arthritis can tell [...]

Gerald A Grant, MD ASAP Conference Host

June 13th, 2024|Comments Off on Gerald A Grant, MD ASAP Conference Host

Dr Gerald Grant is a neurosurgeon, scientist, and chair of the Department of Neurosurgery at Duke University. He previously hosted our conference in San Francisco (2016) during his [...]