View the following patient resources for more information and advice for living with these disorders.

1. Weather and Chiari Malformation & Syringomyelia
2. Nine Steps to Better Health
3. A-Z Guide with Tips for Traveling
4. Recognizing and Managing Sleep Problems in Chiari Malformation
5. Effectively Communicating Your Pain
6. What is the Relationship between Chiari I and Obesity
7. Stress and Chronic Illness
8. Heat Intolerance in Syringomyelia Patients
9. Pregnancy and Chiari Malformation
10. Exercise Concepts for Chiari Patients
11. Coping with Syringomyelia and Chiari

Videos for Managing Chronic Pain

• Rethinking Pain Diagnosis & Management in Chiari Malformations and Syringomyelia – John Crawford, MD
• Medical Marijuana – The Health Professional’s Role – David Knowlton
• Pain Profiles in CM and Management – John, Crawford, MD
• Pain Management with Pharmacologic & Complementary Modalities – Ann Berger, MD
• The Highs & Lows of Pot for a Pain – David Knowlton
• Medicinal Marijuana for Pain in Patients with Chiari Malformation – Erol Veznedaroglu, MD
• When is a Headache Chiari? Approaches to Headache Management – Roger Kula, MD
• Management of Post Chiari Occipital Pain with Nerve Stimulation – Konstantin Slavin, MD

Chronic illness affects more than physical health. These expert presentations explore emotional wellness, resilience, and improving quality of life while living with Chiari and syringomyelia:

• Psychological Impact of Chronic Illness – K Lester, PsyD
• Beyond Chiari & Syringomyelia – John Oro, MD
• How Does Chiari Affect Quality of Life? – Gerald Grant, MD
• Living with CM/M Longevity and Wellness – Barth Green, MD

Living with chronic pain and neurological illness can feel isolating, but you do not have to face it alone. Visit our support page to find community groups, educational resources, and ways to connect with fellow patients and caregivers.

The Six Domains of Psychological Well-Being

Psychologist Carol Ryff identified six key dimensions that contribute to emotional wellness and resilience:

• Self-Acceptance
• Personal Growth
• Purpose in Life
• Environmental Mastery
• Autonomy
• Positive Relationships with Others

For people living with Chiari malformation and syringomyelia, these aspects of well-being can play an important role in coping with the day-to-day challenges of chronic illness.