ASAP Conference

ASAP Conference

ASAP 2025 Conference

ASAP’s 38th Annual Conference

Advancing Research, Treatment & Hope for Chiari Malformation, Syringomyelia & Related Disorders

The ASAP Conference is going virtual this year—making it easier than ever to attend from anywhere. Patients, families, caregivers, and advocates are invited to join us online for two days of learning, connection, and an exploration into neuroscience research.

ASAP conferences bring together leading experts from the fields that matter most to the SM/CM community. Featuring more than 20 speakers, this year’s program explores a wide range of topics, including related disorders and common comorbidities. Together, these sessions help build a more connected understanding of syringomyelia, Chiari malformation and related disorders, supporting more informed and integrated patient care.

Registration is free! Advance sign-up is required to receive access to the virtual sessions.

Join us from the comfort of home and be part of a community dedicated to research, education, and support for those affected by syringomyelia, Chiari malformation and related disorders.

Reserve your spot today!

Conference Date: Tuesday, July 28th – Wednesday, July 29th, 2026 at 10:15 AM – 5:45 PM EST

EVENT FEATURES

Live sessions with experts

Patient-focused topics

Q&A opportunities

Support group meeting

Speakers

Here are some of the distinguished speakers joining us. More will be announced soon.

Speaker Topics

  • Craniocervical Instability

  • Chiari Malformation

  • CSF Leaks
  • Dysautonomia
  • Ehlers-Danlos Syndrome
  • Intracranial Hyper/Hypotension
  • MCAS

  • Neuroradiology

  • Pain Management

  • POTS & Orthostatic Hypotension

  • Scoliosis
  • Syringomyelia

  • Treatment/Surgery

  • More coming soon!

     

Full schedule coming soon. Check back for speaker updates!

Sessions will be recorded and available on the ASAP YouTube channel or conference gallery. Only virtual attendees can join the conversation and access the full program!

QUESTIONS?