If you’re newly diagnosed with CM/SM, you may be overwhelmed by what happens next. Let’s start with the basics. Yes, you should seek consultation from a neurosurgeon.

Make the most of your appointment by listing questions in advance. View our recommended list of questions to ask your neurosurgery specialist during your next appointment.

This page shares trusted resources, offering a practical starting point for doctors or anyone seeking clear overviews of diagnosis, treatment, and patient care considerations.

This page is our central hub for patients looking for education from technical medical articles to handbooks and guides information about diagnostics, treatments and more.

From school accommodations and scholarships to medical grants and peer connections, this page is designed to help families feel informed, supported, and empowered at every stage.

From legislation and workplace accommodations to financial aid and travel assistance, these tools help patients confidently navigate life with a disability.

The most valuable ASAP resource is the annual conference, where patients, caregivers and medical experts come together. Watch presentations outlining the latest research and treatment efforts for CM/SM.

Connect with a supportive community that understands your journey through ASAP’s virtual, phone, Facebook, and local support options. Help and understanding are always within reach.

Discover wellness-focused resources designed to empower people living with chronic pain from Chiari malformation and syringomyelia, supporting both physical health and emotional well-being.

This page helps patients understand conditions commonly associated with CM/SM. By explaining related disorders and overlapping symptoms, it empowers patients to pursue more informed, comprehensive care.

Here is a clear, patient-friendly glossary of medical and neurosurgical terms related to Chiari and syringomyelia, designed to help you better understand diagnoses and care discussions.

Follow the ASAP blog for a first look at news concerning your Chiari and syringomyelia health and longevity, and stay in the know with ASAP happenings.