1.800.ASAP.282 | info@asap.org

1.800.ASAP.282 | info@asap.org

1.800.ASAP.282 | info@asap.org

We Will Find An Answer A.S.A.P.
ASAP, established in 1988


We Will Find An Answer A.S.A.P. ASAP, established in 1988


We Will Find An Answer A.S.A.P. ASAP, established in 1988




9 08, 2022

ASAP Funded Research PFD vs PFDD

By |2023-04-13T14:35:15-05:00August 9th, 2022|ASAP NEWS, News|

Long-term outcomes of Posterior fossa decompression for Chiari malformation type 1: which patients are most prone to failure?

The role of an osseous-only posterior fossa decompression (PFD) for Chiari malformation type 1 (CM1) remains controversial. A team of doctors from George Washington University and Children’s National […]

22 04, 2019

Syringomyelia Awareness 2019

By |2019-04-22T09:50:10-05:00April 22nd, 2019|ASAP NEWS, News|

In 1988 Don and Barbara White officially founded the American Syringomyelia Alliance Project, Inc. A grassroots organization to spread awareness about a rare disorder that Barbara was diagnosed with several years earlier. It would be several more before she learned the cause of […]

11 12, 2017

Bay Area Support Group Meeting

By |2017-12-11T10:35:42-06:00December 11th, 2017|ASAP NEWS, News|

The ASAP Bay Area Support Group will meet January 11, 2018 from 5 – 7 pm PST at the Stanford Children’s Health – Lucille Packard Children’s Hospital – Stanford, California.

Gerald Grant, MD, FACS, Neurosurgeon and Associate Professor of Neurosurgery at the Stanford University Medical Center […]

15 08, 2017

UK Doctor Raises Funds for ASAP

By |2017-08-15T13:44:05-05:00August 15th, 2017|ASAP NEWS, News|

Andrew Brodbelt is a Consultant Neurosurgeon who became interested in patients with syringomyelia and Chiari malformations when he did his PhD in post traumatic syringomyelia in Sydney, Australia with Marcus Stoodley. In July Dr Brodbelt spoke at […]

5 07, 2016

Dancin Power

By |2016-07-05T10:33:01-05:00July 5th, 2016|ASAP NEWS, News|

Dancin Power teaches interactive dance classes 100% free of charge to hospitalized children, including patients facing chronic and life-threatening illnesses. By carefully adjusting all movements to better match each patient’s needs, Dancin Power is committed to putting physical activity within the reach of all children […]

27 05, 2016


By |2016-05-27T12:12:35-05:00May 27th, 2016|ASAP NEWS, News|

A physiatrist is a physician who specializes in physical medicine and rehabilitation. They can play an important role in the battle those with Chiari and syringomyelia face on a daily basis. During the 2014 ASAP conference in Princeton, New Jersey, Harry Schwartz, MD […]

15 10, 2015

Scholarships for Students with Disabilities

By |2020-02-04T13:04:31-06:00October 15th, 2015|ASAP NEWS, News|

With more adaptive technologies and progressive legislature, prospective college students with disabilities have countless resources available to make the transition to higher education less stressful. Affordable Colleges Online just updated their College Resources for Students with Disabilities guidebook. You can see the guide here:

5 05, 2015

2015 Speakers Confirmed

By |2015-05-05T13:31:24-05:00May 5th, 2015|ASAP NEWS, News|

July 22-25, 2015
Marriott at Eagle Crest
Ypsilanti, Michigan
Cormac Mayer, MD
University of Michigan Health System

Speakers: Allison Ashley-Koch, PhD, Duke University; Rajiv Bapuraj, MD, University of Michigan; Ulrich Batzdorf, MD, UCLA; Paolo Bolognese, MD, NSPC; Wade Cooper, MD, University of Michigan; Leon Dure, MD, University of Alabama; […]


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