Dr. Vez, a renowned surgeon and a member of the Medical Advisory Board of ASAP, is holding a monthly support group on the first Wednesday of every month. You are invited to join the upcoming virtual meeting on […]
APR 11, 2024
By David Pedersen
Neurosurgeon recognized worldwide as pioneer in treating skull-base abnormalities
Long-term outcomes of Posterior fossa decompression for Chiari malformation type 1: which patients are most prone to failure?
The role of an osseous-only posterior fossa decompression (PFD) for Chiari malformation type 1 (CM1) remains controversial. A team of doctors from George Washington University and Children’s National […]
ASAP Awards 2020 Grants
We are pleased to announce that three new research grants have been awarded for a total of $243,192.00. To learn more about these projects click here. You can also click Research on the Home page.
In 1988 Don and Barbara White officially founded the American Syringomyelia Alliance Project, Inc. A grassroots organization to spread awareness about a rare disorder that Barbara was diagnosed with several years earlier. It would be several more before she learned the cause of […]
The ASAP Bay Area Support Group will meet January 11, 2018 from 5 – 7 pm PST at the Stanford Children’s Health – Lucille Packard Children’s Hospital – Stanford, California.
Gerald Grant, MD, FACS, Neurosurgeon and Associate Professor of Neurosurgery at the Stanford University Medical Center […]
Andrew Brodbelt is a Consultant Neurosurgeon who became interested in patients with syringomyelia and Chiari malformations when he did his PhD in post traumatic syringomyelia in Sydney, Australia with Marcus Stoodley. In July Dr Brodbelt spoke at […]
Dancin Power teaches interactive dance classes 100% free of charge to hospitalized children, including patients facing chronic and life-threatening illnesses. By carefully adjusting all movements to better match each patient’s needs, Dancin Power is committed to putting physical activity within the reach of all children […]
A physiatrist is a physician who specializes in physical medicine and rehabilitation. They can play an important role in the battle those with Chiari and syringomyelia face on a daily basis. During the 2014 ASAP conference in Princeton, New Jersey, Harry Schwartz, MD […]
With more adaptive technologies and progressive legislature, prospective college students with disabilities have countless resources available to make the transition to higher education less stressful. Affordable Colleges Online just updated their College Resources for Students with Disabilities guidebook. You can see the guide here:
