If you have chronic pain keeping a pain journal can be a valuable tool. Keep track of your pain levels, triggers and occurrence. Make notes during the day when your pain is better and worse. Describe the type of pain (ache, burning, pressure, deep […]
Those facing a condition that can drastically change their lives need support. Often it comes in the form of a stranger. It is hard for those who do not have a disorder to fully understand but someone who shares the condition even if […]
Over the years I have often been told by adults that they did not realize daily headaches were abnormal. They were hesitant to share their symptoms with others for fear of being different or causing their parents anxiety. For most children it is […]
Recycling is a requirement in many cities. But have you ever considered recycling unused medication or old medical equipment? We know that we should not keep medication around that we no longer use. But instead of flushing it down the toilet where […]
Have you ever wondered why Chiari is capitalized and syringomyelia is not? It is not grammatically correct to capitalize the names of disorders or diseases. However Chiari malformation was named after a researcher which is why it is capitalized. Professor Chiari first […]
Last month ASAP Outreach webinar dealt with Chronic Pain and the Holidays with
Dr. Lance LaCerte. If you missed this, just click on the link below.
click here to watch webinar
With hundreds of thousands of rare disorders it is not surprising that so many doctors have never heard of Chiari or syringomyelia. But where does that leave the patients? In many cases, they must become their own advocate, searching the Internet for information. Unfortunately not […]
Here are some words to help when trying to describe your pain to you doctor.
Achy – if a part of your body feels achy, you feel a pain there that is continuous but not very strong
Acute- used for describing pain that is very strong and […]
I occasionally receive emails for the Genetic Alliance about tips that could be helpful. This one seemed worth passing on.
Do you know your family health history? Check out these cool and easy-to-use tools: the Does It Run In the Family? toolkit and the […]
When I came to work for ASAP almost 23 years ago, I never imagined how much this job would affect my life. One thing for sure I never expected I would still be here after all this time. Mostly becasue I thought they would find […]
