2013 Chiari & Syringomyelia Conference
Save the Date! July 24 – 27, 2013 Los Angeles California Co-host Ulrich Batzdorf, MD and Langston Holly, MD
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09, 2012
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09, 2012
Give Comfort, Improve a Life
Shop from your seat, not on your feet. ASAP is pleased to announce a new Holiday Season Event. Give comfort to someone’s life with a set of high quality microfiber sheets equivalent […]
28
08, 2012
Affordable Care Act
I was asked to repeat this message. September 23, 2010 marks the six-month anniversary of the passage of the Patient Protection and Affordable Care Act (ACA). It also ushers in a new set of insurance reforms that will enable more children and families to […]
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06, 2012
How many people have Chiari 1
In an article posted on Neurology Now it says that an article published in the New England Journal of Medicine in 2007 reported that an estimated 3 million people in the US have Chiari. I would say there must be a lot of people […]
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03, 2012
Together We Can… Walk & Roll
Whether you live in Colorado, Indiana, New York or South Carolina, you can make a difference by spreading awareness and raising funds to support those affected by Chiari and syringomyelia. Click here for more information.
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01, 2012
First Step in Potential Treatment
Researchers from the University of Central Florida have created cells that protect nerves in the brain and spinal cord. The cells were developed from umbilical cord blood stem cells and could have applications the treatment of spinal cord injury and other nervous system diseases. […]
12
01, 2012
GINA
The Genetic Information Nondiscrimination Act (GINA) is a federal law that protects individuals from genetic discrimination (i.e. being treated unfairly because of differences in their DNA that increase their risk for disease). Enacted in 2008, GINA protects from genetic discrimination in insurance and employment.
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01, 2012
Do your symptoms get worse in the winter?
After twenty years with ASAP I’ve notice that more people seem to be diagnsosed in the winter. People also seem to have more symptoms in the winter. Not sure if it is because of being less active, the cold weather, etc. Have […]
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10, 2011
ASAP Men’s Facebook Support Group
This forum is an opportunity for men associated with Chiari and syringomyelia to have a private opportunity to discuss various issues and provide support in a positive manner. The forum is open to all men. Patients, Spouses, and Parents. Our goal is to bring important […]
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08, 2011
Upcoming Events
Check out the Upcoming Events for information on Support Group meetings and walks.