Dana lives in Connecticut and was diagnosed with syringomyelia from C-5 to conus in June of 2008. Her colorful hat hides a shaved head. Severe head pain had her literally “pulling her hair out”, so she finally gave up and shaved it off.

She has a wide variety of symptoms including neck, arm, and back pain, numbness, hand swelling, short term memory loss, fluctuations in blood pressure and heart rate, dizziness and fatigue. Currently, she is still waiting for further neurosurgical consults.