Support
Those facing a condition that can drastically change their lives need support. Often it comes in the form of a stranger. It is hard for those who do not have a disorder to fully understand but someone who shares the condition even if […]
ASAP 2013 Awards
We are grateful to all our volunteers who take part in the growth of ASAP, giving their knowledge, their skills and their time.
HELPING HAND VOLUNTEERS
Our Helping Hand volunteers help keep ASAP running smoothly! By giving their time, energy and/or talents, they help us to further […]
KFACC Summer Connections
Kids For A Cure Club Summer Newsletter
I am excited to introduce myself as a new volunteer with ASAP and that I will be chairing the Kids For A Cure Club. I live in Kansas with my husband, Kevin, and our four children: Christian (16), Julianne […]
Swing For The Cure 2013
Swing Fore the Cure
Charity Golf Tournament
Help raise awareness about Chiari malformation and syringomyelia while enjoying a round of golf at the prestigious Edgewood Golf Club.
Event Host: Melissa Sanders
Date: June 21, 2013
Place: Edgewood Golf Club, 16497 Kennedy Road, Auburn, […]
Become an ASAP Member
Membership in the American Syringomyelia & Chiari Alliance Project is free. Request a free information package and sign-up for the newsletter. That’s all it takes. Not sure if you want to be a member? Just request a free information package. You […]
Children with CM/SM
Over the years I have often been told by adults that they did not realize daily headaches were abnormal. They were hesitant to share their symptoms with others for fear of being different or causing their parents anxiety. For most children it is […]
Recycling
Recycling is a requirement in many cities. But have you ever considered recycling unused medication or old medical equipment? We know that we should not keep medication around that we no longer use. But instead of flushing it down the toilet where […]
Chiari & Syringomyelia
Have you ever wondered why Chiari is capitalized and syringomyelia is not? It is not grammatically correct to capitalize the names of disorders or diseases. However Chiari malformation was named after a researcher which is why it is capitalized. Professor Chiari first […]
Chronic Pain and the Holidays
Last month ASAP Outreach webinar dealt with Chronic Pain and the Holidays with
Dr. Lance LaCerte. If you missed this, just click on the link below.
click here to watch webinar
Too many rare disorders cause patients not to find the help they need.
With hundreds of thousands of rare disorders it is not surprising that so many doctors have never heard of Chiari or syringomyelia. But where does that leave the patients? In many cases, they must become their own advocate, searching the Internet for information. Unfortunately not […]