Genetic Causes of Chiari
Genetic and Other Causes of Chiari I Malformation
Presented by Dr Simon Gregory, Associate Professor at Duke University Center for Human Genetics now. Click on name to download Duke Genetic Study brochure
Genetic and Other Causes of Chiari I Malformation
Simon Gregory, PhD,
Albemarle, NC Walk and Roll
Over 100 people registered to walk at City Lake Park in Albemarle North Carolina on September 3. Special thanks to walk coordinator, Tammy Helms for an exceptional job.
Upcoming Events
Check out the Upcoming Events for information on Support Group meetings and walks.
Greenfield Indiana walk
The Tutrow family held the second Greenfield Walk & Roll on June 11. The walk raised over $3,500 and brought awareness about Chiari and syringomyelia to thousands.
Summerville SC Walk
The Summerville, South Carolina walk-a-thon had almost 100 participant and raised over $7,000. Laurie Yeh, walk coordinator, said that it was a great experience and she met a lot of wonder people. […]
2011 Conference
We have the conference main agenda available to view and registration is open. This year’s theme is Reclaiming Health. The Omni Resort is a great hotel for a vacation. So make your plans now.
IEP App for iPhone
The Parent Educational Advocacy Training Center (PEATC) offers an Individualized Education Program (IEP) Checklist iPhone app. School-aged students with disabilities are provided an Individualized Education Program designed to support their unique educational needs. The IEP Checklist App helps parents of students with special needs become […]
Breakthrough Pain
Breakthrough pain — often called “flares” by doctors or “flare-ups” by patients — is serious enough to upset the lives of people who are already trying to control chronic pain with one or more drugs. BTP is not new pain. It is a more severe […]
Children and syringomyelia
Do you have a child who has been diagnosed with idiopathic syringomyelia? Due to the increased diagnosis of Chiari malformation, many neurosurgeons are becoming more familiar with CM related symptoms but what about a child who does not have Chiari? Those parents face […]