Patient Guides & Resources

Patient Guides & Resources

patient guides & resources

Here is a Comprehensive Resource Guide for patients and families affected by Chiari Malformation and syringomyelia.

The Patient handbook is a comprehensive resource guide for patients and families affected by Chiari Malformation and syringomyelia.

Edited by Ulrich Batzdorf, MD, available for download

How to Advocate for Your Health

Advocating for your health when dealing with Chiari malformation, syringomyelia and their related disorders is crucial for getting the proper care and treatment you need. Here are some key strategies to help you advocate effectively 

Patient Resources

ASAP is a trusted source of information for patients, parents and caregivers affected by Chiari malformation, syringomyelia and their related disorders. Our patient resources include a wide range of medically-reviewed articles covering the latest research, treatment options and care strategies for these complex conditions. Whether you’re looking for detailed medical insights or practical tips, this resource is designed to support you at every stage of your journey.