We have compiled a list of web sites and resources that you may find helpful. When you click on these links, you will be leaving the American Syringomyelia & Chiari Alliance Project (ASAP) web site. ASAP is not responsible for the content or accuracy of information found there, nor do we endorse any of these sites.
Chronic Pain:
These sites provide information on issues pertaining to pediatric chronic pain.
Disabilities/Educational Rights
There are many federal laws which protect those with disabilities. These sites contain information about disability and educational rights that may pertain to your child.
- My Child’s Special Needs/Disabilities at Ed.gov
- Comprehensive Disability-Related Information and Resources
- IDEA: Individuals with Disabilities Education Act 2004
- Frequently Asked Questions about Section 504 and the Education of Children with Disabilities
- Wright’s Law Special Education Law and Advocacy
- Pacer Center- Parent Advocacy Center for Educational Rights
- FAPE – Family and Advocates Partnership for Education
- What You Should Know About Assistive Technology
- LD Online- Information on Learning Disabilities and ADHD
- National Center on Learning Disabilities
- Learning Disabilities Association of America
- CHADD- Children and Adults with Attention Deficit/ Hyperactivity Disorder
- National Parent Center List- Find a center near you!
- Find a Special Education Advocate as well as other resources near you at Yellow Pages for Kids with Disabilities
- Brave Kids – Resource Directory for children with disabilities, chronic, life threatening illnesses and special needs
- Cerebral Palsy Treatment Options Cerebral Palsy Guide is a national organization that helps families and individuals affected by cerebral palsy. they provide educational material about CP so that parents and caregivers can be better prepared for raising a child affected by this developmental disorder.
There are networking opportunities for children and teens to connect with others.
- Bandaids and Backboards – This is a site about growing up with medical problems
- ASAP Facebook
- Kids For A Cure Club
Flight Assistance
Many organizations provide free or reduced travel assistance to those in need.
- Air Care Alliance
- Lifestar
- Angel Flight
- Children’s Flight of Hope
- National Patient Travel Center
- Hope Flight Foundation
Continuing Education
- Scholarships for Students with Disabilities
- Resources for Students with Disabilities
- Career Guides for Students with Disabilities
- Affordable Colleges Online came to be in 2011 with the mission to provide strategies and information about pursuing an affordable higher education. Their free community resources and tools span topics such as financial-aid and college savings strategies, affordability and scorecard rankings, opportunities for Veterans and people with disabilities, and online learning resources. They have been featured by nearly 500 top universities in the United States, Canada, and the UK along by several many state and local government organizations. For more information click on the link above or visit http://www.affordablecollegesonline.org/online-colleges/ With more adaptive technologies and progressive legislature, prospective college students with disabilities have countless resources available to make the transition to higher education less stressful. Affordable Colleges Online just updated their College Resources for Students with Disabilities guidebook. You can see the guide here: http://www.affordablecollegesonline.org/college-resource-center/resources-for-students-with-disabilities/
They’ve also created a complementary guide to scholarships and financial aid for students with disabilities to help students and their families better understand the vast number of financial aid options available to them. Key elements of the guide include:
– A comprehensive review of all of the scholarships available, listed by disability
– Amounts awarded and deadlines for each scholarship
– Debt-forgiveness options for those who acquired a disability post-graduation
Link to guidebook: http://www.affordablecollegesonline.org/college-resource-center/affordable-colleges-for-students-with-disabilities/
Affordable Colleges Online has added a new resource to bring awareness to cyber bullying! Understanding Cyberbullying in College
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Affordable Degrees Online has put together a website focused on explaining some of the lesser-known ways to reduce the cost of a college degree. Sadly, few students realize that they might be able to help bring their dream school within reach financially by taking advantage of their prior life experience, as well as select online courses (varies by school, of course). Here are a few important elements of the site:
Most Affordable Colleges by State
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Accredited Schools Online is a comprehensive accreditation resource that provides prospective students and families with the tools needed to make well-informed decisions about their education.
A team of data scientists and higher education experts spent the months analyzing data and making this tool the best of its kind on the web. Prospective students are able to search for schools using various criteria and compare online college programs to find the right fit for their personal, educational, and professional needs.
What sets this tool apart from others is the extensive data and capabilities they provide users. Students can compare up to 4 schools at one time, researching how each stacks up when it comes to cost, accreditation, available programs and more.
College navigation and comparison tool: http://www.accreditedschoolsonline.org/online-colleges/
