The Kelly Family
For the Kelly family, Chiari and syringomyelia are a family affair. It took 20 years for mom, Jennifer, to finally receive a diagnosis of Chiari after years of being dismissed by […]
21
03, 2010
21
03, 2010
Volunteer
Volunteers needed to help with events, collect auction items, conference, and special projects. By sharing your talents with ASAP, you can help make life better for all those affected by Chiari and/or syringomyelia.
15
03, 2010
Attention ASAP Facebook Members!
In order to keep our online community better updated and informed we have created a new and improved Facebook Fanpage!
24
01, 2010
Mason’s Mission
Congratulations to the Gaffney’s for organizing a successful fundraiser! The Gaffney’s decided to start fundraising after their son Mason was diagnosed with Chiari at six months of age.
24
01, 2010
Walking for Research Dollars
Jaxon Eilers may someday be a doctor but today he just wants to be like his friends. As 7-year-old Jaxon watched neighborhood kids going door-to-door selling magazines and delivering Cub Scout popcorn, he wanted to do a fundraiser, too.
24
01, 2010
Cruisin’ For Chiari
It was nothing but smooth sailing for the First Annual Cruisin’ for Chiari, held on August 30th in Brielle NJ. Over 75 guests boarded the River Queen, a traditional paddle boat that sails the Manasquan River, Point Pleasant Canal, Barnegat Bay and Metedeconk River. Guests enjoyed a 3 hour cruise that included a buffet lunch, silent auction, music and raffle.
24
01, 2010
Questions about Social Security Determination
2009 Conference Presetation provided by: Connie Valt and Bob Hunt
Social Security Administration
Connie DaValt
[email protected]
WI Disability Determination Bureau
Bob Hunt
[email protected]
SSDI & SSI Disability Overview
Both programs make payments to people with disabilities.
Social Security Disability […]
24
01, 2010
Syrinx Shunts
by John Jane Jr., MD
What are the different types of syrinx shunting procedures?
In general, a “shunt” is any procedure that diverts fluid from one space to another. For a syrinx shunt, the fluid is diverted from the syrinx into another space where the fluid can […]
11
12, 2009
Pediatric Early Detection
Just days after birth, Mylee Grace was admitted to the neonatal intensive care unit in severe distress. Diagnosed with aspiration pneumonia, she miraculously survived. But her battles were only beginning.
Mylee suffered from dysphagia (difficulty […]
11
12, 2009
The Chiari I Abnormality in Childhood
by Arnold H. Menezes, MD
The following article is a transcribed presentation from the 2004 ASAP Conference.
Abstract
The clinically symptomatic child with the hindbrain herniation syndrome (Chiari I) can differ significantly from the adult patient. A prospective analysis of these children has brought an understanding of the […]