In 1988 Don and Barbara White officially founded the American Syringomyelia Alliance Project, Inc. A grassroots organization to spread awareness about a rare disorder that Barbara was diagnosed with several years earlier. It would be several more before she learned the cause of […]
ASAP Chiari & Syringomyelia Conference
July 24-27, 2019
Philadelphia (Center City), Pennsylvania
Emma-Leigh is a a 15 year old diagnosed with syringomyelia. In October she volunteered at a local haunted house to raise money and awareness for ASAP. The haunted house is run by the United Volunteers of Maine and the volunteers select the […]
My name is Elisa Torrance and I am so honored to be the 2019 Miss Teen Yucaipa Titleholder!
I am a Sophomore at Yucaipa High School who is an athlete and often thought of as […]
On September 15th, we had our 1st Cruising For Chiari Motorcycle ride to raise awareness for Chiari. It was a small group of about 20 riders. It was a gorgeous ride and the weather was perfect. While my hope was for a […]
On September 15 Molly Lichtenstein and family hosted their 4th annual walk to raise awareness in Maryland. Molly works hard every year to make her walk more successful and once again she has surpassed her goals.
ASAP UNITES
Cosponsors scientific meeting
In the interest of supporting the CM/SM community, ASAP will cosponsor the
SM/CM/EDS
Scientific/ Medical Meeting
June 2019
Hosted by Marcus Stoodley, M.D., and Lynne Bilston, M.D., this meeting will bring specialists together to challenge, have candid discussions, and share new ideas. […]
The American Syringomyelia & Chiari Alliance Project, Inc. is seeking your help in getting every state’s government office to declare September the official month for Chiari Awareness. We have been doing this for several years with great success. Unfortunately it has be be renewed […]
four more speakers have confirmed to present at the ASAP Chiari & Syringomyelia Conference this July!
David D. Limbrick, MD, PhD – Professor of Neurological Surgery and Pediatrics
Neurosurgeon-in-Chief, St. Louis Children’s Hospital
Neurosurgery Residency Associate Director
Petra Klinge, MD, PhD – Associate Professor of Neurosurgery at the Warren […]
