maria’s fundraiser
Helping to make a difference in the lives of those affected by Chiari and syringomyelia, Maria held a fundraiser September 28th at the Acme in Doylestown, Pa. She raised over $450 for research! […]
3
10, 2012
22
09, 2011
Maren
July2010, Maren went to a friend’s house. While playing on a trampoline, she became very light headed. Her vision blurred and her head began to hurt. Her brother drove to pick her up. As soon as she arrived home we knew something was very wrong. We took her to an Urgent Care where she became much worse with extreme head pain and trembling. She then began having seizure activity and they took her by ambulance to Children's Hospital in St. Paul, MN.
21
03, 2010
Bill
It all started for Bill after a motor vehicle accident in August of 1995. After being released home from the hospital, he quickly returned to work but the problems were obvious: forgetfulness, leaving his vehicle running […]
21
03, 2010
Kimberly
Kimberly was diagnosed at the age of three with idiopathic syringomyelia. She underwent a major surgery to have a syrinx shunt placed in 1999 but her relief was short lived. After consulting with a more experienced neurosurgeon, the family learned that Kimberly actually had Chiari […]
21
03, 2010
Dana
Dana lives in Connecticut and was diagnosed with syringomyelia from C-5 to conus in June of 2008. Her colorful hat hides a shaved head. Severe head pain had her literally “pulling her hair out”, so […]
21
03, 2010
Keegan and Kaylee
This brother and sister have something in common after all! Both have the same diagnosis. Keegan was diagnosed at the age of eight with Chiari malformation and syringomyelia. He was born with […]
21
03, 2010
Glenna
Glenna has had scoliosis for as long as she can remember. It was never much of a problem until Christmas Eve 2004. Suddenly, out of no where, Glenna experienced the most excruciating pain she’d […]
21
03, 2010
Roz
Roz was diagnosed at the age of 48 with both Chiari and syringomyelia. She had a decompression surgery in 1999. The surgery was successful in providing relief of her debilitating headaches. She still has a syrinx […]
21
03, 2010
The Kelly Family
For the Kelly family, Chiari and syringomyelia are a family affair. It took 20 years for mom, Jennifer, to finally receive a diagnosis of Chiari after years of being dismissed by […]